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UDC Data Reports

Data Reports: Available to the Public

The purpose of the surveillance reports listed below is to disseminate the information collected through the Universal Data Collection (UDC) program to care providers, public health workers, community advocates, health educators and planners, patients in the bleeding disorders community and others. The reports contain information about the demographics of the participants, their blood and factor product use, and the occurrence and treatment of joint and infectious diseases.

Report on the Universal Data Collection Program January 2014

Report on the Universal Data Collection Program July 2005

Report on the Universal Data Collection Program (Special report on children under two years of age in UDC) July 2006

Report on the Universal Data Collection Program (Special report summarizing data on females with von Willebrand disease) December 2003



You can view and print national and regional reports from the Universal Data Collection Project. These data reports are available to the general public.

 

Specify location:

National

Regional

Select a region:

Specify type of report:

Number of patient forms submitted to UDC

Patient enrollment status

Patient re-enrollment

Patient demographics (Hemophilia)

Patient demographics (VWD & Other)

Treatment/clinical characteristics (Hemophilia)

Treatment/clinical characteristics (VWD & Other)

Treatment and outcome by severity (Hemophilia)

Treatment and outcome by severity (VWD & Other)

Risk Factors by Age (Hemophilia)

Risk Factors by Age (VWD)

Risk Factors by Race (Hemophilia)

Risk Factors by Race (VWD)

All of the above

 

 

 

Data, Data Reports, and Tools: Available Only to Participating Hemophilia Treatment Centers (HTCs)


Due to confidentiality requirements, certain data, data reports and tools are only available only to HTCs that participate in the UDC program.

Types of information available:

  • HTC-specific summary UDC data reports
  • Downloadable HTC-specific UDC data files
  • Monitoring tools for regional coordinators


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Contact Us:
  • Centers for Disease Control and Prevention
  • National Center on Birth Defects and Developmental Disabilities
  • Division of Blood Disorders
  • 1600 Clifton Road
  • MS E-64
  • Atlanta, GA 30333
  • 800-CDC-INFO
    (800-232-4636)
    TTY: (888) 232-6348
    24 Hours/Every Day
  • cdcinfo@cdc.gov
USA.gov: The U.S. Government's Official Web PortalDepartment of Health and Human Services
Centers for Disease Control and Prevention   1600 Clifton Rd. Atlanta, GA 30333, USA
800-CDC-INFO (800-232-4636) TTY: (888) 232-6348, 24 Hours/Every Day - cdcinfo@cdc.gov

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