conference banner    

 
Overview | Session Materials | Student Abstracts |
Background | Evaluation & CE Credits | Acknowledgements

 

 
 
Exploring Options for Expanded Newborn Screening

For a complete session outline, please click here.

Panelists:

Mary Ann Baily, PhD, Associate for Ethics and Health Policy, The Hastings Center, Garrison, NY
Slide Presentation | Speaker Biography

William Becker, DO, MPH, Medical Director, Ohio Department of Health Laboratory, Columbus, OH
Slide Presentation | Speaker Biography

Maxine Hayes, MD, MPH, State Health Officer, Washington State Department of Health, Olympia, WA
Slide Presentation | Speaker Biography

Ellen Wright Clayton, MD, JD, Rosalind E. Franklin Professor and Director, Center for Genetics and Health Policy, Professor of Pediatrics, and Professor of Law, Vanderbilt University, Nashville, TN
Slide Presentation | Speaker Biography

Moderator: Scott Grosse, PhD, Health Economist, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, GA
Speaker Biography

Learning Objectives:

  • Discuss challenges that have been posed to legal interventions in domestic violence, and the need for collaborative, multidisciplinary approaches to reducing domestic violence;
  • Explore the concept of community coordinated response (CCR) to domestic violence;
  • Discuss the need for evaluation in key areas, particularly the contribution legal change and reform can make to preventing domestic violence; and
  • Highlight lessons learned by field professionals and overview new tools and strategies.

Resource Material:

Therrell BL Jr. U.S. newborn screening policy dilemmas for the twenty-first century. Mol Genet Metab. 2001;74:64-74.
Atkinson K, Zuckerman B, Sharfstein JM, Levin D, Blatt RJ, Koh HK. A public health response to emerging technology: expansion of the Massachusetts newborn screening program. Public Health Rep. 2001;116:122–131.

Grosse S, Gwinn M. Assisting states in assessing newborn screening options. Public Health Rep. 2001;116:169–172.
Clayton EW. What should be the role of public health in newborn screening and prenatal diagnosis? Am J Prev Med. 1999;16:111–115.

Grosse SD, Boyle CA, Botkin JR, et al. for CDC. Newborn screening for cystic fibrosis: evaluation of benefits and risks and recommendations for state newborn screening programs. MMWR Recomm Rep. 2004;53(RR-13):1–36. Available at: http://www.cdc.gov/mmwr/PDF/RR/RR5313.pdf

American College of Medical Genetics. Newborn screening: toward a uniform screening panel and system. Executive summary. March 2005. Available at: ftp://ftp.hrsa.gov/mchb/genetics/screeningdraftsummary.pdf

  1. Baily MA. Final report: fairness in the distribution of costs & benefits in newborn screening programs. HRSA contract No. 01-MCHB-70A with The Hastings Center, Garrison, NY. February, 2003.
  2. Burke T, Rosenbaum S. Molloy v Meier and the expanding standard of medical care: implications for public health policy and practice. Public Health Rep. 2005;120:209-10.
  3. Grosse SD. Does newborn screening save money? The difference between cost-effective and cost-saving interventions. J Pediatr. 2005;146:168-170.
 

This page is last updated on June 20, 2005.